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Did you know that the last day in February is known as Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year! And Fun Fact, the Rare Disease Day "color" is JEAN! This February we are asking that you #WEARJEANS4RAREGENES to show your support for kiddos who have rare disease. At Coastal Kids Home Care, we care for rare! Coastal Kids is the only agency providing in-home medical care for kids with rare diseases in this community.

  • Shift nursing for CHARGE Syndrome

  • Blood draws for Hemophilia

  • Life Saving infusions for Muscular Dystrophy

  • Music and Art Therapy for rare and terminal cancers

Follow us on social media to learn more about Rare Disease Day at Coastal Kids Home Care. You will have a chance to meet some of the rare kids we've cared for through the years. Since 2005, Coastal Kids has provided more than 78,000 in-home nursing and therapy visits to more than 10,000 medically fragile infants and children with rare illness and disability from Monterey, Santa Clara, San Benito AND Santa Clara Counties.

Ways to Support Rare Disease Day...

  • Host a fundraiser at school/work

  • Donate online in honor of someone who is rare

  • Share your story about being rare

  • Snap a pic of you wearing your jeans this month and send to us!

Rare Disease Day Sign
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