The impact of COVID-19 on CK Families

National Hospice and Palliative Care Organization (NHPCO) Pediatric E-Journal Issue #62 featuring Coastal Kids Home Care.



Isolation in COVID-19 and the Role of Home-Based Palliative Care and Counseling p. 17

Ruth Shapiro, LCSW, and Kelli Mullen Brown, MA

The authors of this article recognize that, while many families caring for children with medical complexity already had limited contact with the outside world because of their child’s mobility limitations and fragile health, the COVID-19 pandemic added new challenges in caring for that child, arranging distance learning for siblings, and meeting the economic needs of the family— all of which might be summed up in terms of increased isolation. As family caregivers reached out for help in meeting these challenges, the authors describe responses that focus on the value of anticipatory grief counseling.


Creativity during COVID-19 in Honoring a Child Who Has Died p. 37

Ruth Shapiro, LCSW, and Kelli Mullen Brown, MA

Because pandemic restrictions altered all communal gatherings, the authors recognize that “social workers and counselors supporting families coping with the loss of a child are challenged to help grieving parents shift their family, religious, or cultural expectations of gathering to other activities that will meet their need for emotional connection and memorializing of their child.” To meet these challenges, the authors explain how “our pediatric palliative care team begins working with parents prior to their child’s death to explore practical and creative options to help them process and express their grief.” They note the importance of connections with bereaved family members and creative funeral or memorial ceremonies. The article concludes: “The current pandemic is inspiring us to create new traditions and cope in new ways that will support us long after we have returned to a world in which we can gather. Until then, creativity is the key to honoring and celebrating a child who has died.”


To read full articles, click here.